This post is so good to read. Our girl went to emergency Friday with left side paralysis, today (Wed) we brought her home with a diagnosis of ANNPE. We are grateful she is home, we will do whatever she needs of us to get her up and going again.

That's wonderful to hear. We've just got a diagnosis and along the way its been clear that there is still a lack of understanding in the field of prognosis. Thankfully everyone we've seen has said its just time for our girl. Left side paralysis but deep pain so we are hopeful.